Research Digests
Research Digests are a new development at EnCOAR – they are short summaries of research articles by EnCOAR members that are presented in a dementia-friendly document and video. The goal is to make research easier to understand and more accessible to people.
How are Research Digests produced?
1. Research articles are summarized by two EnCOAR Research Analysts and then reviewed by the authors.
2. This summary is then converted to lay-persons language and scored against the Flesch-Kincaid and Gunning Fox readability indexes.
3. Based off of additional research around digital design for dementia, each Research Digest is inserted into a colourful, easy to read template that is designed to be accessible.
4. Lastly, Research Digests are produced into a short, narrated video for people to listen along to.
Have questions or comments? Feel free to reach out at ellen.snowball@uhn.ca
#1: Complexity of Nurse Practitioners’ Role
Complexity of Nurse Practitioners’ Role in Facilitating a Dignified Death for Long-Term Care Home Residents during the COVID-19 Pandemic
#2: Supportive Supervision and Staff Intent
Supportive Supervision and Staff Intent to Turn Over in Long-Term Care Homes
#3: Unpacking the multiple dimensions and levels of responsibility
Unpacking the multiple dimensions and levels of responsibility of the charge nurse role in long-term care facilities
#4: Context matters when implementing patient centred rehabilitation
Context matters when implementing patient centred rehabilitation models for persons with cognitive impairment: a case study
#7: Impact of Dementia on Patterns of Home Care
This study looks at older adults (with dementia and without) with hip fractures. It is especially interested to see what happens to these older adults 30 days after discharge from a rehabilitation unit.
#10: Engagement of people with lived experience of dementia
EPLED was created to support persons with dementia and care partners to be involved in the CCNA research process.
#12: Engaging People with Lived Experience of Dementia
Patient and public involvement/engagement in research on dementia is not new, but it is becoming increasingly common.
#5: Social connection and physical health outcomes
Social connection is a key determinant of physical and mental health and well-being. However, little is known about the health impacts in long-term care.
#8: : Understanding transitional care programs
Transitional Care Programs were created to help hospitalized older adults, including helping them go back home.
#6: Hearing Screening for Residents in Long-Term Care
Hearing loss becomes increasingly common as we age. Sensory decline can have a negative impact on an individual’s functioning and can contribute to frailty.
#9: Nurse Practitioners Rising to the Challenge
There is an urgent need to address the quality of care that residents receive in long-term care homes. This has been made more apparent by the COVID-19 pandemic.
#11: Home- and community-level predictors of social connection
Social connection is about the relationships residents have with friends, family and visitors as well as others in the home, including fellow residents, staff and volunteers.
1. Test Your Readability. Readable. (2020, April 19). Retrieved September 13, 2021, from https://readable.com/.
2. Hennessy, S, Reilly, A. What works for people with dementia? Guidelines for resource development. Retrieved June 7, 2021, from https://www.epled.ca/en/website
3. Williams, R. Dementia Digital Design Guidelines. (2017). Retrieved June 7, 2021, from https://rikwilliams.net/ux/accessibility/dementia-digital-design-guidelines/
4. Holsapple, C.W., Pakath, R., Sasidharan, S. (2005). A Website Interface Design Framework for the Cognitively Impaired: a Study in the Context of Alzheimer’s Disease. Journal of Electronic Commerce Research, 6(4).
5. 2.0 Plain Language Guidelines. (2020, Feb 20) Retrieved September 13, 2021, from Canada.ca Content Style Guide - Canada.ca
6. Caldwell, B., Cooper, M., Guarino Reid, L., Vanderheiden, G. Web Content Accessibility Guidelines (WCAG) 2.0. (2008, Dec 11) Retrieved September 13, 2021 from Web Content Accessibility Guidelines (WCAG) 2.0 (w3.org)
7. Nielsen, J. Legibility, Readability, and Comprehension: Making Users Read Your Words (2015, Nov 15) Retrieved September 13, 2021 from Nielsen Norman Group: UX Research, Training, and Consulting (nngroup.com)
8. Color Safe – accessible web color combinations. Retrieved September 13, 2021 from Color Safe - accessible web color combinations
9. DEEP Guide: Writing dementia-friendly information. (2013, Nov) Retrieved September 13, 2021 from DEEP-Guide-Writing-dementia-friendly-information.pdf (dementiavoices.org.uk) 10. Colour Contrast Analyser (CCA). Retrieved September 13, 2021 from Color Contrast Checker - TPGi
11. Campbell, O. Designing For The Elderly: Ways Older People Use Digital Technology Differently. (2015, Feb 5) Retrieved September 13, 2021 from Designing For The Elderly: Ways Older People Use Digital Technology Differently — Smashing Magazine
12. Schnelli, A., Hirt, J., Zeller, A. (2021) Persons with dementia as internet users: what are their needs? A qualitative study. Journal of Clinical Nursing, 30(5-6):849-860